Allison Ruth Russcher was born on March 12, 2014, with IUGR, Loeys-Dietz Syndrome, cleft palate, and CHD. She was the bravest girl we have ever known, and won the hearts of everyone she met.
Princess Alli passed away on January 29, 2015 after suffering complications from RSV. She took our hearts when she went, but left us with a mission to help families like ours that have found themselves caring for a sick or injured child.
Child loss is the hardest thing we have ever had to walk through, but we have found peace and hope because of the promise of eternal life through Jesus, and purpose through this work He has called us to do. It is our hope that we can share the love that He has so freely given us with others.
Matthew 5:16 (KJV) “Let your light shine before men, that they may see your good works, and glorify your Father which is in heaven.”
Want to learn more? I’d love to hear from you! Feel free to email me at: Melanie@princessallifoundation.org
What is Loeys-Dietz Syndrome?
Loeys-Dietz Syndrome, or LDS, is a connective tissue disorder similar to Marfan Syndrome that can affect several of the body’s systems, but is characterized by cardiac complications such as aggressive aneurysms. It requires frequent screening via MRI or CT to reduce the risk of complications. There is no cure, only management of the symptoms.
Why is awareness important? Left undiagnosed, LDS patients can develop life-threatening aneurysms. Since LDS patients can develop aneurysms at a very young age, and in more areas of the body than Marfan patients, it is essential that medical professionals be educated so that LDS patients receive accurate diagnosis and are put on the correct screening regimen.